Dr. Sarah Arvey, Director of Research and Evaluation at the LIVESTRONG Foundation, is thrilled to have been asked to act as a member of an Advisory Board created to provide guidance to investigators conducting new and exciting research on cancer survivorship. The study is led by investigators at the George Washington University Cancer Institute and the School of Public Health and Health Services, who were awarded $2.1 million dollars for three years from the prestigious Patient-Centered Outcomes Research Institute (PCORI) in 2013 to evaluate models of survivorship care. At all stages of the research project–from study design to implementation to analysis–survivors and advocates play a role in the project.
The study, Evaluating Cancer Survivorship Care Models, seeks to help improve survivorship care for people who have completed active cancer treatment. Many people who finish treatment feel “lost in transition”; they have difficulty managing impacts of cancer and find little support from the healthcare system. Dr. Holly Mead, principal investigator (PI), reported, “The goal of our project is to transform cancer care by creating standards of quality that are defined by patients and to use these standards to identify models of survivorship care that are most effective. We are particularly excited to be working with leading survivor and community cancer organizations to ensure that cancer survivorship care meets the needs of patients.” The project will focus on models of care for survivors of breast, prostate and colorectal cancers, but will be relevant for understanding needs of survivors of other cancers as well. The emphasis is on patient-centered outcomes, which are outcomes that are most significant to patients, such as satisfaction and functional status.
Of particular importance is ensuring that cancer survivors have ample opportunities to provide feedback that will inform the investigators how to conduct the project so that it meets needs of cancer survivors. The first opportunity to do this is currently underway and some of you may be able to participate in this effort.
Focus groups are being held for survivors of breast, prostate and colorectal cancers in the locations listed below. If you would like to participate in any of these areas, please contact the study staff directly at the numbers and email addresses below. They will be able to determine your eligibility for participation in the study.
- Washington, DC (Nov. 7-12, 2013) : Deena Loeffler, firstname.lastname@example.org or (202) 994-7319
- San Francisco Bay Area (Nov. 18-19, 2013): Margaret Stauffer, email@example.com or (925) 933-0107
- Chicago, Illinois (Nov. 18-20, 2013): Rebecca Fritz, firstname.lastname@example.org or (312) 464-9900
- Greenville, South Carolina (Dec. 3-4, 2013) : Kerri Susko, email@example.com or (864) 455-5809
- Bozeman, Montana (Dec. 11-13, 2013) : Justin Short, firstname.lastname@example.org or (406) 582-1600
- Bedminster, New Jersey (TBA in Jan. 2014): Ellen Levine, email@example.com or (908) 658-5400